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The recommendations from the workshop were just published in the medical literature: Recommendations for real-world evidence of efficacy and safety of GLP-1 agonists in Prader-Willi syndrome: Report of a workshop held by the Foundation for Prader-Willi Research and International Prader Willi Syndrome Organisation The experts agreed on the urgent need to collect detailed real-world data from individuals with PWS who are prescribed GLP-1s

This is particularly important for medications with a narrow therapeutic index or those requiring rapid onset of action

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